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Home Diet & Research One Diet for Europe One Diet for Europe - Page 2  

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Life-long dietary restriction of galactose is the only effective treatment for galactosaemia. Although it is agreed that lactose must be avoided, a diet free of dairy products still contains some galactose from plant and animal sources. Safe amounts of dietary galactose have not been defined (Gitzelmann 2000) and it would be difficult to have a diet totally free of galactose (Acosta 1995). There has been some concern that a low galactose intake may contribute to the long-term complications seen in galactosaemia and this has led to uncertainty about the severity of diet recommended. However, it is now understood there is endogenous production of galactose from glucose in galactosaemia (Berry et al 1995), and this may be significant in the development of long term complications.

Throughout Europe there is no universal approach to dietary management of galactosaemia. Other than lactose, there is discrepancy concerning the inclusion or exclusion of potential sources of galactose such as galactosides (peas, beans, and lentils), galactose storage organs or the so-called nucleoproteins (offal) and free and bound galactose found in fruit and vegetables. With the advent of the Internet, patients and parents from all over Europe have more international contact with each other. Different dietary approaches cause confusion, uncertainty and may lead to misconceptions. Therefore, it is important to identify and document the scale of the discrepancy in advice across Europe.

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Last updated: 27.04.2005