Home
   
Contact Disclaimer Breaking News
Home Impressum Help Sitemap E-mail to the Secretary of EGS
   
   

Home About EGS The aims and the objectives of the EGS Print this site
«« Guided Tour No.1 »»

  Opens a printer-friendly version of this page in a new window

Our main aim is to share information, to promote awareness of and to stimulate research into Galactosaemia within Europe.

Our aims and objectives in detail are

  • to promote the educational and social welfare of persons affected by Galactosaemia ,
  • to lobby for changes in European law which affect the galactosaemic patient and the careers of the galactosaemic patient,
  • to promote awareness of the disease within the medical and teaching professions and within the food and pharmaceutical industries,
  • to lobby for better disclosure in the labeling of foods and pharmaceuticals,
  • to stimulate scientific and medical research into Galactosaemia,
  • to co-ordinate European research into and studies of Galactosaemia,
  • to give and to distribute information to its members and other interested parties.
  • to install a data bank and a library with all studies and information about Galactosaemia, with national food lists, national newsletters and similar documentation,
  • to give information to affected persons travelling in a European country (food lists, addresses for emergency and similar information),
  • to co-ordinate methods of treatment in Europe,

  • to organise meetings,
  • to edit periodicals,
  • to promote the establishment of national societies,
  • to organize holiday-exchanges for affected children,
  • to undertake projects and co-operate in undertakings that promote the aims of the society, and
  • to undertake activities in support of the aims of its members and the interest of the society as a whole.
 
To the top of this page

 
Last updated: 14.06.2006