Our main aim is to share information, to promote awareness of and to stimulate research into Galactosaemia within Europe.
Our aims and objectives in detail are
- to promote the educational and social welfare of persons affected by Galactosaemia ,
- to lobby for changes in European law which affect the galactosaemic patient and the careers of the galactosaemic patient,
- to promote awareness of the disease within the medical and teaching professions and within the food and pharmaceutical industries,
- to lobby for better disclosure in the labeling of foods and pharmaceuticals,
- to stimulate scientific and medical research into Galactosaemia,
- to co-ordinate European research into and studies of Galactosaemia,
- to give and to distribute information to its members and other interested parties.
- to install a data bank and a library with all studies and information about Galactosaemia, with national food lists, national newsletters and similar documentation,
- to give information to affected persons travelling in a European country (food lists, addresses for emergency and similar information),
- to co-ordinate methods of treatment in Europe,
- to organise meetings,
- to edit periodicals,
- to promote the establishment of national societies,
- to organize holiday-exchanges for affected children,
- to undertake projects and co-operate in undertakings that promote the aims of the society, and
- to undertake activities in support of the aims of its members and the interest of the society as a whole.
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